Diagnosis

From the moment I first seen my beautiful baby boy I question the shape of his head. I was given every excuse possible including; it is due to prematurity (he was born 5 weeks early), its just the shape of his head, and that's the normal molding of a newborn skull! Well I thought, I already had a newborn before and his head was never shaped that way, but I left it to the professionals and went about my business disregarding my suspicions! Logan was discharged from the hospital with me just three days after his big debut! Perfectly normal and healthy little baby is what I thought I was taking home.

On June 1st, Logan had his first Dr. appointment with his pediatrician to have his weight and bilirueben checked. While at that appointment I again question the shape of his little head and she assured me that it was nothing to worry about, that is was very normal and that it would reshape itself. So again, I let it go! Well 3 weeks went on by and my baby boy was already ONE month old! Absolutely perfect in my eyes, just a misshaped head :-) I often found myself making small jokes about my little boy and his football head because I had no idea what I was about to learn! It was time for yet another Dr. appointment for his Well Baby check-up! Everything was going great, weight looked good, height was on track, and head circumference also good! When the doc came in to look him over and do his little check-up I again questioned his head. I apologized to her for continuing to ask about it, but I just felt in my heart that something wasn't right. She started to feel his little head and I can almost see a concerned look in her eye. I asked her if the "ridge" that I was feeling on the back of his head was normal and she said in some cases it can be. I asked "and what about the other cases?" She then said well, "I think I will refer you to a neurosurgeon to have him checked over to see what they think!" NEUROSURGEON-- my heart sank into my stomach... what does she mean?? That is a doctor that works on brains... whats wrong with my baby's brain???? I was completely in shock! With tears in my eyes and a lump in my throat I asked her what is it? She then calmly explained that it could be nothing at all and that we would just have it looked at. (I really feel that she didn't want to tell me the whole truth because I was there alone with both boys and she could see the emotional wreck that I had become) She then told me that she would schedule everything for me and that they would call me with the appointment! So basically I left that appointment totally confused and extremely scared. Later that day I got a phone call from the doctor saying that she talked to the neurosurgeon's office and they required a 3-D cat-scan to be done first before they would even see him and that he would need to be sedated for the procedure! She then told me that he was to tiny to be sedated so they would just wait until he was two months old. Thats when mommy mode kicked in! I explained to her that I wanted at least x-rays to be done now and that if the x-rays showed something then I would wait until it was safe for the CT scan. She said that was fine and that she would set it all up for us. After getting off the phone with her I decided to google "skull abnormalities in babies" and the first thing that popped up was a picture of a little boy who had saggital craniosynostosis! I was crushed!!! This looked exactly like my sons head and I knew right then and there that it was indeed that!